With the help of a sponsor and media company, to help bring this all together. The acromegaly ambassadors were successfully able to bring this together and have a very powerful week.
Santino Matrundola, who is an acromegaly ambassador and professional photographer arranged with the media company to bring us all in over 3 different days, to do a photo shoot at his studio with all of us. The media company asked us to do a short paragraph of what the importance was for all of us to say about our mission as an acromegaly ambassador for Nov 1st.
Then a gallery was rented in Montreal, Quebec and we had our photos and who we were, our mission statement and where we were all from put up to show cases for the media, and general public. This was done in September, and it was amazing, most of the ambassadors were able to attend and speak to the general public and share our journeys, and we had some media attend.
The amazing part of this night for all of us ambassadors, we had 2 acromegaly people attend, as they had heard or read about this night, and came to meet others with acromegaly, as they had never meet anyone else before. We were all moved and there was lots of hugging and tears. This project that Santino wanted to do to help bring much awareness to Acromegaly, was something he truly wanted to do from his heart, and was able to do with his amazing talent, and he called the project “Seeing the Light”.
PLEASE CLICK ON THIS LINK TO READ AND SEE OUR PHOTO’S.
We are also in the process of keeping this movement going by hopefully displaying our photo’s and write-ups in other galleries across Canada. (still in the works). Through the process of all of us coming together again this year and working together for 8 months to prepare, we were able to accomplish:
- The Vancouver Acromegaly Support Group getting approved for the 3rd year in a row Nov 1st Acromegaly Awareness Day for Western Canada, in British Columbia, Canada.
- The Atlantic Support Group getting for the first year a proclamation approved for Nov 1st Acromegaly Awareness Day in Nova Scotia, Canada, by Peggy McDonald.
- The Alberta Pituitary Support Group for the first time this year received a proclamation for Nov 1st Acromegaly Awareness Day in Alberta, Canada.
- And Dianna Cook-Sauve from Ottawa is the first part (process) of having Acromegaly Awareness Day approved for Ontario, Canada.
In Ottawa, a new support group page was started and with the social media around Nov 1st with Dianna Cook- Sauve being on 2 different radio stations and write-ups in the newspaper, her Facebook page took off for new members in the Ottawa region. Dianna is now in the process of having a meet and greet hopefully at the end of January to bring everyone together, she has also formed together a few acromegaly patients within Ottawa, and is the process of setting up Ottawa Acromegaly Support Group. So exciting for all in the surrounding area.
We know have 7 acromegaly support groups in 7 different provinces formed in Canada out of 13 and hopefully new chapters will form this upcoming year.
The Vancouver Acromegaly Support Group and Atlantic Acromegaly Support Group, were asked if the two would come together and do a write up for Acromegaly Awareness Day of who we were and our mission for acromegaly, by another sponsor and media company. We were able to do this in a very short time and our article was posted in TheSun.com Canada, which will run everyday for a month and a half and will be seen in all provinces of Canada.
The Atlantic Acromegaly Support Group did a absolutely amazing thing, they came up with the idea to have blue t-shirts made, with the saying of “Ask Us About Acromegaly”, and wore on the news for there awareness day of acromegaly. Absolutely brilliant idea, and I personally love it as this is a very creative way to spread the word of people feeling comfortable to ask about Acromegaly, and have acromegaly share their knowledge of acromegaly, to bring much more awareness.
Last year, which was the first year that we formed this group, we brought awareness about acromegaly in Canada, we were able to reach 6.3 million people through social media, the news and write-ups in the papers. I am looking forward to finding out the results in the very near future of how many people we were able to reach in Canada for this year.
There is still a lot more to be done in Canada, and we are moving forward to create a National Acromegaly Canada Society, to help bring more knowledge and awareness and support to those who are still not diagnosed and those that have acromegaly and are alone.
By Deanna Badiuk
President/Founder/Director of the Vancouver Acromegaly Support Group
Acromegaly Ambassador of Canada